Welcome:

There are a number of ways members are using our collaborative portal:

Clinicians

  1. Reviewing past treatment history information for DIPG cases
  2. Asking opinions from other physicians on treatment experiences and new ideas
  3. Obtaining consent from family members to research past treatment information
  4. Reviewing surveys provided by DIPG family members
  5. Utilizing the DIPG resource page that provides clinicians numerous DIPG specific sources of support and knowledge.

Family and Friends

  1. Obtain the Family Care Package which includes the Moss Report and a robust compilation of information relevant to families dealing with a DIPG diagnosis.
  2. Communicating with each other and physicians to get important questions answered by people with direct experience.
  3. Take surveys to help the research community obtain a greater breadth of knowledge on the overall DIPG challenge.
  4. Provide consent to researchers in order to allow the scientific community to obtain larger data sets for learning.
  5. Researching clinical trials that their loved one may be a candidate for.